It doesn't surprise me that many painkillers don't help FM sufferers. I have FM, and with that I have MCS (multiple chemical sensitivities), I couldn't take a painkiller even if it did work. A doctor here in Melbourne discovered the link between FM and bacteria in the body. My doctor who is also a naturopath, had me tested for 9 fairly rare bacterial diseases. Unbelievably I came back positive to 7 of them. The most detrimental to my body was Q-fever, which had apparently been rampant in my system for many years. My immune system was so stuffed that it hadn't even bothered to fight it, I didn't have any detectable anti-bodies. I was red flagged by the department of health when they saw I had no antibodies, assuming I had only just caught it, they wanted to know where the outbreak was. Q-fever is normally associated with abattoir workers, but unfortunately for me, it can become air borne, and a number of years ago I had to drive past an abattoir everyday on my way to work. So now on top of FM, CFS, MCS, I have QFS, which is Q-fever fatigue syndrome, even more debilitating than CFS
So the bacteria in the body also makes the FM sufferer photosensitive, some of you may notice you get tired or drained in sunlight, well apparently the sunlight is what feeds the bacteria and in turn worsens the FM symptoms. The only treatment I know of, and refuse to take, is the Marshall Protocol ( www.marshallprotocol.com
), which involves 3 years of antibiotics and hiding from all forms of light. The body gets so overly photosensitive whilst taking the antibiotics, that exposure to sunlight can kill some individuals as the body goes into shock. As an FM sufferer, the last thing I know I need is more stress
I'm sorry that many of you also have FM, but it is nice to meet others who know what you are going through. I have taken on the flower 'The Forget Me Not'
as my only little plant totem, as I find many of us who suffer from FM, ME, CFS, MCS, Lupis, etc are the forgotten people. Many of our symptoms are not external, so people can't see what is wrong with us, sometimes I wish that I had a cast on my arm
just to externalise a sample of my pain to the world. I can no longer work, and I've lost most of my friends because they can't or won't understand why I can't visit them, go out, or have them visit me at times. How do you convey to someone that you can't get out of bed because it feels like you are being crushed in a full body vice, not many people could even fathom that?
But enough whinging from me! I'm having faith in the inherent power of my mind and the gentle blessings of the universe